Thursday, June 19, 2014

The Waiting is Over

It had been a week. No one called us. I called my Mom every day - I was a complete and utter nervous wreck. I had to tell Sophie what was going on because I think she thought I was losing it. When I told her, it was like I welcomed her into the world of being an adult immediately - she was fast tracked into what it's like being a Mom of kid like Cillian. Lots of questions, not so many answers, lots of visits, lots of scary waiting for test results and waiting for calls from Lurie Children's' Hospital.

I had a dentist appointment on Wednesday night and when I arrived, I noticed my iphone didn't ring despite the face that I had missed a call. I didn't recognize the number and then my heart sank. I knew I had just missed a call from Dr. R. I googled the area code and sure enough it was IL just southern IL. I called the number back and it was a satellite office for the Children's hospital in southern IL. I listened to the voicemail. He sounded tired, matter of fact and said that there were a number of things he had to discuss with me tomorrow. Have him paged. And if they give me any trouble, tell the nurse he asked me to page him.

You know the feeling you're feeling right now reading that? Imagine hearing that. I played it for my dentist. I asked what he thought that meant. His faced dropped and he said honestly, I would say he has something serious to talk to you about. I agreed. He's a great dentist so he changed the subject and we talked about Game of Thrones.

So I called the next day, had him paged, and we talked. Now they weren't so sure from where the drain was originating - it could be the brain. The cyst - yes cyst - was the source of the drain and they couldn't tell where the drain was beginning. Because of this, a neurosurgeon was being brought in to also do the surgery. If the drain left the nose, Dr. R would stop and Dr. A would take over. I thanked him for being so thorough and I told him we were leaving for Florida in a few days and he said I could set up the appointment to talk to Dr. A when we got back.

So, that's where things stand. There's a cyst in my son's head and it's draining. It's been draining for almost a year. We're not sure where it's coming from - the nose or the brain.

We are also about to take our first plane trip with Cillian. Our first vacation since 2011. This was the first time since our honeymoon that Doug took more than one day off from work - he took four. We're going to see his Mom and Dad in Florida and take our babies to the beach. We all need this.

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